Have you heard of The Rare Stitch project? No, neither had I until I experienced one of those remarkable serendipitous events that our online knitty world seems to excel in.
I had just finished reading an article on the Ravelry home page under their regular Humans of Ravelry slot - you can read it here (you may need to scroll down a little to find it). The article talks about Raveller tentenkits - aka Margot - whose son was diagnosed with a very rare condition. She uses her knitting to raise awareness of rare diseases by incorporating a deliberately wrong (rare) stitch into each project as a visual representation of one ‘rare or unusual’ stitch in a sea of ‘normal’ stitches. Margot has a lovely Instagram account as @1010_studio and she is well worth a follow.
With cup of coffee in hand I literally popped over to Instagram to connect with Margot and the first post I see is a post from the lovely Deb - @tinckhickman sharing her ‘rare stitch’ project. She talked very movingly about a recent diagnosis within the family of a rare and unusual disorder and also linked back to Margot’s work.
How weird is that? I love how interconnected our knitting world is and I love that this project is doing such great work to highlight awareness of such rare and often overlooked diseases.
Today - 28th February - is Rare Disease Day so it seemed like the perfect time to share this little anecdote with you and to also help to raise awareness this group of disorders. For many patients and their families the diagnosis of rare disease (literally something that affects 1 in a million or fewer) can seem incredibly isolating. Support groups and help can be far away, or non existent and it can be baffling to navigate the healthcare system with healthcare professionals who also know very little about your condition.
Rare Disease Day is organised and supported by EuroDis - Rare Diseases Europe - who bring together research and support for those affected under one umbrella organisation and try to amplify the work ongoing.
So if you do one thing today, why not add a ‘rare stitch’ to your WIP and share it online with the hashtag #therarestitch and show a little support for this worthwhile project